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 The Personal Touch in Alzheimer's Care Since 1994 8th Year Anniversairy On~Line www.alzheimerfamilycaremanagement.com Websites For Today's Providers of Quality Dementia Care Featuring New Arizona Service Section Ronald W. Reagan 1911 - 2004 click here click here to sign Condolence Book click here for daughter Patti's recent interview and introduction to "The Long Goodbye" Click the Back Arrow and/or Reload Button as needed  
"Preferred Websites continues to assist dementia caregiving efforts worldwide." "Thank you for continuing to make us a part of your quality dementia care efforts." Karen Rice, LNHA, Gerontologist, Mediator Alzheimer Mediation For Dementia Conflict, Scottsdale, AZ Founder, Alzheimer's & Family Care Management "Ask Karen", Carepathways.com  "The goal for this page remains unchanged to provide you with awareness conveniently. Below are links to the most current information on Alzheimer's, aging and health issues; information to prepare you and to help you cope as you begin your personal journey into a very unfamiliar world." "From the privacy of where you are right now, valuable culturally sensitive information, resources, services and forms from all over the globe can be explored, immediately downloaded and printed eliminating any further wait time. Most publications will be mailed to you free of charge - an additional option." "These links have each been carefully reviewed to provide you with state-of-the art tools and a comforting peace of mind in the privacy of where you are right now. I believe that you will quickly discover that you are not alone. Along with information are e-mail links inviting you to share your questions and needs directly with the sources of help. I encourage you to do so." "Your questions and problem-solving efforts are very important to us too. Please visit the bottom of this page to personally search out quality healthcare facilities in all 50 states. We appreciate hearing from you when we can further assist." "As you work with this page, please, tell us how we may better meet your needs. An email link is provided below." "Sit back now, explore and enjoy your unique navigational experience." Those of you new to using the internet, the articles of introduction to internet use is good to start out with. Otherwise, please skip down to Links In The Spotlight" click the BACK ARROW "<=" to return to this page Generations on Line is a national nonprofit Internet literacy program for seniors. It has developed a free, interface which simplifies the Medicare site. The interface helps seniors work with the Medicare site regardless of a lack of computer experience. The link for this new program is http://www.golmedicare.org click here for immediate access You are not alone in being new to internet use. Kaiser Family Foundation found that only 2% of all seniors had accessed www.medicare.gov. Another study reported that nearly 80% of people over 65 do not have access to computers or, they do but are not computer literate. This help site is free and provides step-by-step instructions to help you enroll in the new drug card benefits and even to determine eligibility for a $600 drug credit for low-income seniors. The program also provides a simplified internet program for seniors in nursing homes, retirement homes, senior centers and public libraries offering with free simplified e-mail and other features. The National Institutes of Health (NIH) Click here for NIA's New Spanish-Language Website www.nihseniorhealth.gov is a "senior friendly website" designed to encourage and assist older people's use of the Internet. This site in particular is considered as the resource for the best information on health and medical research. Its larger print and interactive component offer seniors extra support in their internet use. click here LINKS "In The Spotlight" The Number 1 Question: What is Dementia? Definitions for dementia are wide-spread in the public domain. Unfortunately, they are often misleading if not inaccurate which compounds confusion and anxiety about what we do not fully understand. Here are definitions and related information on the dementias which you can trust. "The Dementias: Hope Through Research", NINDS. NIH Publication No. 04-2252 Prepared by: Office of Communications and Public Liaison National Institute of Neurological Disorders and Stroke National Institutes of Health Bethesda, MD 20892 click here Introducing Expert Voices from The New York Times Tracing The Path from DNA To Dementia Expert Voices from New York Times New on Alzheimer's Diagnosis from NIA Here it is! The new booklet specifically for people dealing with the beginning stages of dementia. It is available from the National Institute on Aging's Alzheimer's Disease Education and Referral (ADEAR) Center. What's Next in Diagnosing Alzheimers New Standards To Improve The Quality of Dementia Care Download CARF Standards  "No other mode of communication best reaches and teaches as film." From the Filmmakers... "Independent Lense" PBS' "Independent Lens," is a weekly documentary program featuring independent films, will begin showings of "Almost Home," a 90-minute documentary that chronicles one year at St. John's on the Lake, a Milwaukee retirement community which offers independent living, assisted living and a nursing home levels of care. This model has sought to shift from a medical model of care to a social model. The film profiles the director of St. John's, as well as nursing assistants, residents and their family members. The program Web site will include an interview with filmmakers Lisa Gildehaus and Brad Lichtenstein, an interactive forum for viewers and links to related resources. Check local PBS listings for air times. (Gildehaus/Lichtenstein, "Independent Lens," PBS, 1/31). click here "The Forgetting: A Portrait of Alzheimer's." The first documentary to tackle the entire spectrum of Alzheimer's disease, exploring both its human toll and the latest scientific research. click here PBS This link features five PBS episodes tracking the life of the brain. Beginning with infancy, it concludes with "The Aging Brain." Among the topics is the on-going search for a cure to Alzheimer's disease. click here "Coping With Caregiving" Now available to you here, every day, 24 hours a day for your listening convenience is Jacqueline Marcell's live internet radio program, "Coping with Caregiving" click here Hear Jacqueline Marcell: "Assisted Living and Nursing Home Placement Decision-making" Hear Karen Rice: "Family Caregiver Mediation" What Is Mediation? Hear Maggie Calkins, Ph.D. "How to have successful visits in long-term care settings...Ways to modify the home for someone with dementia". Click here for all Archived Interviews ARISE ARIZONA Tune in every Sunday from 2-3 pm on KKNT, 960 AM The Patriot and listen to Live Long, Live Well, a show focused on seniors, children of aging parents and baby boomers facing retirement. The show is comprised of three unique reports - Health and Wellness - Financial and Legal Matters - Senior Lifestyles & Leisure Experts in the fields of Eldercare and Senior Living, including members of the ARISE Arizona Senior Network are featured. click here Alternative Medicine "The Healing Zone" This radio program is hosted by Dr. Dharma, a leader in alternative approaches for enhancing memory and preventing Alzheimer's. About Dr. Dharma The Healing Zone Radio Show airs every Wednesday 2:00 pm to 3:00 pm Pacific Standard Time 5:00 pm to 6:00 pm Eastern Standard Time During the radio show, Dr. Dharma is available to answer your questions. In the U.S. Call 1-866-903-TALK (8255) Outside the U.S. 1-858-623-0102 Listening to the show on your computer is just a simple click away. "The Healing Zone" Wednesdays click here for The Healing Zone Newsletter FREE Report From www.Healthywomen.org National Women's Health Report Explores Impact of Alzheimer's Disease on Women click here to order your free copy "Stepping Into the Leadership Role" By: Daniel Kuhn, LCSW, MSW As the person with Alzheimer's Disease no longer possesses the mental skills to be completely independent, Daniel Kuhn contends that a special brand of leadership is called for by the representative and the caregivers. click here Meet Liz Taylor Aging Specialist Liz Taylor offers a weekly aging column which runs in the Seattle area. Making Care Decisions Home Care All Liz Taylor columns Latest from Alzheimer's Scotland click here to visit Alzheimer Scotland click here for their new free caregiver manual Consumers' worry -- will insurer pay if they need care? By Victoria Colliver, Chronicle Staff Writer and looks at claims for person's with Alzheimer's. click here A Perfect Cause This link targets ways to prevent walk away deaths in a variety of care settings including the home setting. click here ElderCare Mediation Family Caregiver Mediation Karen L. Rice, LNHA, Gerontologist, Mediator This link has articles about mediation for family caregiver conflict. Mediate.com The Law Forum Visitors to The Law Forum can locate a lawyer with specific expertise by practice specialty and submit a free, confidential case evaluation form. click here Defined as "The Patient's Advocate", The Medicine Program helps people who qualify to enroll for free prescriptions click here  Choices in Home Care: New performance standards allow consumers to compare services. Source: Advance By Michael Gibbons This article hones in on home care choices and offers a link on quality you should know about. FULL STORY Assisted Living and In-home Care Increase As Nursing Home Beds Decline Source: Eurek Alert This article outlines evidence in longterm care service use trends which identify decline in nursing home bed use by today's aging population. FULL STORY Liz Taylor: Home Care Source: The Seattle Times This article reviews key home care issues you should know about. click here Caregivers' Health In "Downward Spiral" Source: USA Today By Janet Kornblum This article presents latest research on results of home care on the caregiver. FULL STORY New Database Compares Insurance Costs In Metropolitan Areas SOURCES: Healthcare Leadership Trend Watch A new federal database allows companies, consumers, healthcare analysts, and others to compare health insurance costs among the nation’s largest cities and geographical areas. The data table was developed by the Agency for Healthcare Research and Quality (AHRQ), and provides statistics on average annual costs for companies and workers contributing to private-sector health insurance. The data show large geographical variations in how much Americans pay for both family and individual coverage, as well as how much employers contribute to workers’ health insurance premiums, according to an AHRQ release. The database also provides comparisons within states. click here Yee Hong Program To Help Treat Dementia: Scarborough Facility A Pioneer In Treatment For Chinese Seniors SOURCES: insideToronto.com By: Mike Adler This article identifies the cutting edge success of Yee Hong, an organization that pioneered culturally specific care in Alzheimer's now addresses culture in diagnosis efforts. click here Volunteering to Fight A Killer SOURCES: ADVANCE By: Joyce Ward, CNMT, RT(N) The National Institute of Aging, along with its public and private partners in the Alzheimer's Disease Neuroimaging Initiative (ADNI), began recruiting the 800 people needed to participate in a $60 million, five-year study designed to find biomarkers of Alzheimer's disease on February 9th. "We now have about 50 sites qualified for MR imaging," says Michael W. Weiner, MD, director of the Center for Imaging of Neurodegenerative Diseases at the University of California, San Francisco, and the principal investigator of the ADNI." "If we keep enrolling at this rate, we could be finished in a year, but I really think it will take more like 14 to 18 months because the MCI [mild cognitive impairment] patients are the hardest to get." FULL STORY Dementia drugs "divert funds from quality care" SOURCES: Topic.net London (Reuters) September 01, 2006 This report highlights key contenders for quality of care's funding. Britian's state healthcare system is demonstrated. FULL STORY British Alzheimer sufferers win £60m drug fight Source: Observer UK By Jo Revill and Yvonne Roberts Britons suffering from Alzheimer's disease will be given the drug treatments now found to outweigh the financial costs to the government. FULL STORY On-Line Caregiver Support Source: Gainesville.com AlzOnline.net is a comprehensive caregiver support group to help those dealing with Alzheimer's. click here COMMUNICATIONS: Lying for Mom's Sake Source: Washingtonpost.com This article presents best practices for speaking to persons with a dementia which lessens aggrevation and combativeness. click here Aging and the Athlete Source: Advance Is the one you care for athletic? Read on. click here Fuzzy Diagnosis: Is mild cognitive impairment just an early form of Alzheimer's disease? By Jordan Lite NYU Silberstein Aging and Dementia Research Center is researching what factors push a person from "normal" to mild cognitive impairment (MCI) and and who would benefit from preventive treatments once they are available. click here "Music Lets Them Find Missing Memories Therapy Helps Patients Living With Alzheimer's" By Peter Schworm, The Boston Globe This article supports music (and art) therapeutic approaches for person's with Alzheimer's. click here "The Sound of Music" Source: ADVANCE The article reviews coupling music therapy with respiratory therapy and the benefits to health and well-being. Anxiety addressed. click here "Drugs for Alzheimer's agitation often ineffective" SOURCE: USA TODAY Just how many times have you questioned the order or the use of drugs for managing the symptoms of Alzheimer's? This study examined 29 common antidepressants, mood stabilizers, etc. currently used for their actual effectiveness in treating agitation from Alzheimer's. The pressure doctors are under to prescribe the drugs surfaced during the investigation. "Caregivers want a magic pill," says Kaycee Sink, lead author of the paper. "What our study showed is that there is no magic pill." This informative article offers further support for the use of music therapy and pet therapy for easing agitation and behaviors presenting from Alzheimer's. **Recommended for family and professional caregivers click here Planning for Alzheimer's Care: As individuals with Alzheimer's are living longer, they and their families need to plan for a decade of care. Source: Advance By Jill Glomstad Advance targets that families need to plan for a decade of care when the diagnosis is Alzheimer's. click here  Northern Arizona including Greater Phoenix click here Alzheimer's Care Placement Options This link offers key Arizona placement options for Alzheimer's plus offers links for your state. Arizona Alzheimer's Placement Options and State by State Arizona LTC Services This link offers key Arizona LTC resources. Arizona LTC Services Arise Arizona! Tune in every Sunday from 2-3 pm on KKNT, 960 AM The Patriot and listen to Live Long, Live Well, a show focused on seniors, children of aging parents and baby boomers facing retirement. The show is comprised of three unique reports - Health and Wellness - Financial and Legal Matters - Senior Lifestyles & Leisure Experts in the fields of Eldercare and Senior Living, including members of the ARISE Arizona Senior Network are featured. click here SUNHEALTH SunHealth Research Institute Alzheimer's Research in Arizona Identifying Arizona's Need Volunteers Needed For Alzheimer's Tests Alzheimer's Associations in Arizona This link offers access to the Alzheimer's Associations closest to you in Arizona. click here The Centers for Medicare & Medicaid Services The Centers for Medicare & Medicaid Services (CMS) added a mediation component to their Medicare Beneficiary Protection Program in September, 2003 which is run through their national network of Quality Improvement Organizations (QIO). CMS offers mediation as an optional method to resolving quality of care complaints that Medicare patients or their sponsors file against a physician or healthcare provider. click here To contact the Medicare Help Line about mediation, call 1.800.633.4227. Arizona Medicare Beneficiary? Visit Arizona's QIO click here  Northeast Ohio Ohio Medicare Beneficiary? Visit Ohio QIO OhioKePro click here Healthcare Professionals click here Cleveland Alzheimer's Association This link is to Cleveland's Chapter of The Alzheimer's Association. click here The Greater East Ohio Chapter of the Alzheimer's Association This link is to Greater East Ohio Chapter of the Alzheimer's Association click here University Hospital's Foley ElderHealth Center This link provides information on geriatric assessment and scheduling plus geriatric care through University Hospitals of Cleveland. click here Benjamin Rose This link introduces you to the trusted continuum of services provided to Greater Cleveland by Benjamin Rose since 1908. Benjamin Rose has served Greater Cleveland for 96 years and is regarded as the pioneer in gerontology and geriatric services. click here The Cleveland Clinic This link guides you through The Cleveland Clinic system and the ways for scheduling appointments for geriatric care and geriatric assessment. click here  Creator of Validation Therapy Click photo for Naomi's work and resources available to the public. Validation Therapy is a compassionate and positive approach for interacting with someone with dementia. Validation Therapy training is a must for all healthcare professionals in today's integrated healthcare delivery system because, ready or not, dementia has infultrated the system." Karen L. Rice, LNHA, Gerontologist, Mediator, Health and Family Sociologist 1994 Receipient, Carroll Sutton Scholarship for Certification in Validation Therapy 1993 ONECA Award, "Defining Realities in Patient Care: A Study of Alzheimer Disease Patients - An Ethical Dilemma" 
Around Our World NATIONAL ADEAR The Alzheimer's Disease Education and Referral (ADEAR) link is a service of the National Institute of Aging (NIA). It offers cutting edge information about Alzheimer's plus several FREE publications you can order on-line or by phone 1.800.438.4380. "First Study of Alzheimer's Caregivers and End-of-Life Cites Both Remarkable Resilience, Need for Support" click here The National Alzheimer's Association This link is to the National Headquarters in Chicago. click here The National Area Agencies on Aging This link taps you into all Area Agency on Aging links across the United States. Simply click on your state's link. click here FamiliesUSA Families USA is the national organization for health care consumers. It is nonprofit and nonpartisan and advocates for high-quality, affordable health care for all Americans. click here A Perfect Cause This link targets ways to prevent walk away deaths in a variety of care settings including the home setting. click here Nursing Homes from Medicare.gov This is a comprehensive site for those needing nursing home services. click here SSI This link offers FAQ's on SSI. click here Sharingcare This link is an on-line support group with medical and healthcare information for families and healthcare professionals. click here Alzheimer Caregiver This link has helpful tips and resources for caregivers. click here Patient Resources This link offers Alzheimer's Disease Patient Resources plus many links to top national and international organizations. click here Today's Caregiver Magazine This link is a magazine specifically for caregivers. click here Family Caregiver Alliance This link offers lots of information resources and targets long-term care. click here Mayo Clinic Health Oasis This link offers information of value to the Mayo Clinic. click here AARP AARP offers older adults information on a variety of sensitive issues. click here Elder Rage This link is an introduction to ElderCare expert Jacqueline Marcell, her book "Elder Rage" plus features a wealth of information on dementia care. click here  INTERNATIONAL
United Kingdom France Scotland The Netherlands Asia ...coming soon Japan The Bradford Dementia Group University of Bradford West Yorkshire England This link identifies an international partnership in dementia care between England and the United States. The Bradford Dementia Group is the University's Division of Dementia Studies in the School of Health Studies at the University of Bradford, West Yorkshire; a part of Yorkshire Universities located in Leeds. Here, academic efforts focus on developing policy in Britian and forming partnerships abroad. Person-centered dementia research of the late Tom Kitwood, Ph.D. is the foundation of the major effort today in the United States to train staff nation-wide in person-centered care. Visit Bradford Dementia Group at The University of Bradford Visit Heather Hill and The Corinne Dolan Center for Memory & Aging London Official Website Dementia Research Centre This link covers research in the United Kingdom. click here London Alzheimer's Society Dementia Care and Research This link identifies Europe's strong stand against drug use in care of dementia. Their concern: "The Alzheimer's Society is concerned that neuroleptic drugs, otherwise known as antipsychotic or sedative drugs, are being inappropriately over-prescribed to people with dementia. There is particular concern about their use in residential homes" (termed Assisted Living in the United States). "Research suggests that people in residential homes are prescribed up to four times as many drugs as an older person in their own home." The benefits of "person-centered care" for persons with dementia are emphasized. click here Alzheimer's Forum - a website by people with Alzheimer's France Dementia Management in France: Health Care and Support Services In The Community SAGE 2006 France's lack of integrated community care services, insufficient information about services, lack of collaboration between health professionals and the frequent absence of a reliable carer are barriers found to the effective support of France's people with dementia in primary health care settings. click here Scotland Alzheimer Scotland - Action on Dementia This link represents US and European organizations providing health, medical and care research information. Visit Alzheimer Scotland click here for their new free caregiver manual Asia Dementia May Become Top Killer In Asia-Pacific By Satish Cheney SINGAPORE: Dementia-based illnesses like Alzheimer's type Disease may soon overtake heart disease and cancer as the biggest health threat in the Asia Pacific region. A report commissioned by Alzheimer's Disease International also warns dementia may cause significant economic and social problems to address. click here Netherlands How Caregivers Contribute to Problem Behavior of those with Dementia Netherlands Organisation for Scientific Research This link offers new information about caring strategies for person's with Alzheimer's or related dementia. Introduced is "supportive strategy", in which the caregiver adjusts to the patient's level of functioning. Among the findings are decreased restlessness in the patient. click here Clinical focus A clinical site which is sponsored by Janssenn and Cilag Pharmaceuticals. It features up to the minute research on dementia plus exerpts from symposiums in Europe. click here  FREE RESOURCES Advanced Directives from Healthcare Decisions Advanced Directives state an individuals' wishes about their health care treatment. Many people today do not execute these documents for themselves and should. Health Care Decisions is a nonprofit institute devoted to educating communities about Advanced Directives. They urge people to think about their options, discuss their wishes with family and friends, and to put their choices in writing. This website is designed to assist the public with accomplishing these important tasks, and to offer assistance to physicians and other health care professionals. Medical and healthcare professionals want to honor your wishes. Please, make them known. Download your form(s) today - step by step instructions are included. click here click here for U.S. Living Will Registry Patient Resources Download resources on Alzheimer's from top national and international organizations. click here ADEAR Alzheimer's Disease Education and Referral (ADEAR), a service of the National Institute of Aging (NIA), offers cutting edge information about Alzheimer's. FREE downloads. click here Family Caregiver Alliance This link offers lots of download resources and targets long-term care. click here Hammond Care Group - Australia Hammond Care was founded in the early 1930s and has earned the reputation as one of Australia's most innovative aged care organizations, providing care and services for older people, especially those suffering from dementia, both in the community and in residential facilities, with a particular commitment to the financially disadvantaged. Their link offers a wealth of resources to download and implement in your care setting. click here CareFinders CareFinders is a new care planning assistance tool from the National Alzheimer's Association. CareFinders Beyond Books Go To Amazon.com For Groceries & Delivery Consumer Reports October 2006 In July, www.Amazon.com launched an online grocery service with free ground shipping for orders over $25. Other delivery options exist. Caregivers, particularly long-distance caregivers may find this service very effective. We hope that you found some of the answers you need. Additional questions can be sent to Ask Karen. Thank you for your support in 2007.  Civic Center Healthcare Campus 3031 N Civic Center Plaza Ste 257 Scottsdale, AZ 85251 NOTICE: Preferred Websites is under constant revision. Each month, new websites are reviewed for consideration as new monthly entries. Keep this in mind, and please, visit again. Contact us if we can assist you. 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